Aspie adventures....female style

Doing my best to enjoy parenting a teenage daughter with Asperger's Syndrome.

Tuesday, April 25, 2006

It's been a "krappy" day

Oh it started out normal enough. It's Tuesday so we are up early for Chad's paper route. He doesn't really have a paper route but he does deliver newspapers for some publisher on the island just because he is on this side going to that side. So they pay him to carry the papers over once a week. It's great. It pays for all the environmentally sound cleaners and deodorizers and repellents I purchased today anyway.
Anywhoooo, I poured myself a cup of coffee (which Chad made by the way) and started my morning routine. At 7 am I headed upstairs to wake J for school. HOLY MOSES!!!!!!!! The smell that hit me when I opened J's door was horrid. This was not a human smell. I began the search, sniffing as I went. FOUND IT!!!!!!!!!!!!! A teeny tiny pile of cat poo, that rivaled anything I have ever smelled before. After waking J, I ran downstairs for the paper towel and some carpet cleaner and....."vvvwlaaaa" clean as a whistle! The rest of the morning was it's typical chaos and all was right with the world. That is until I came home from errands. HOLY MOSES!!!!!!!!!!!!! The smell that hit me when I opened the front door was more horrid than before. There on the stairs before me was a giant pile of dog poo. You have GOT to be kidding me! I reeled the rest of the paper towel off the holder and proceeded to clean it up....two stairs full. I scrubbed and deoderized with the goal that not one foul smelling proton or neutron would survive....and "vvvwlaaaa" clean as a whistle. With all the cleanser gone and a need for halibut marinade I headed off to the store. I chose Food Pavillion because the lines are shorter this time of day....I picked up more cleanser and marinade and jumped back into the car. The phone rang as I pulled into traffic and J informed me that the dog had now thrown up on the carpet and could he please eat his snack in his room because it smelled so bad?! YOU HAVE GOT TO BE KIDDING ME!!!!! With synapses firing I asked Joe to check the paper towel supply, and sure enough we were completely out! With a donut like spin I swerve into the Safeway parking lot for some paper towel. Prepping myself for more vile disgusting-ness and armed with fresh cleanser and a 6-pk of paper towel I open the door....HOLY MOSES!!!!!!!!!!! The smell that hit me when I opened the front door was not that of barf....oh no.....it was reminiscent of something worse, much worse....something along the lines of a high fever combined with bad mexican food.......it was toxic but I had to go in! Oh don't get me wrong, there was barf alright but wait, there's more!!! The top two steps were dripping with molten illness. I wasn't sure the rubber gloves I slipped on were going to hold up to what I was about to subject them to. Let's see, shop vac, carpet cleaner, oxy-clean, paper towel, water, deoderizer, all purpose cleanser, organic enzyme odor eliminator....mixing and pouring like a chemist I attack the giant brown stains...then with a systematic back and forth motion I suck the concoction up into the shop vac. Pour and vac, pour and vac....I will not rest until every carpet fiber has been cleansed. Finally I was satisfied that the carpet was clean enough to remain in my house for two more weeks at which time I will rip it stair from stair and replace it with fresh new chemically treated, non deficated on carpet...ahhhhhhh
Next I tackled the barf....piece of cake...or not...I don't want to know....at least it's clean now......but what's that smell? And how did the cat get in the storage closet? I think I'll just call the Realtor tomorrow.

Monday, April 24, 2006

Coffee....the juice of life!!!!!!


It was late and it had been a long day. The last thing I do before bed is.......wait, let me correct myself, the last thing we do before bed, is set up the coffee pot for the next morning. You see, lately it has become quite a bit more important to give credit where it is due. For the past 16 years, 2 months, and 24 days I have made the coffee. When Chad left for work at 5 a.m. I was up at 4:15 making coffee. No, no, no don't get me wrong...I am not looking for a pat on the back. I just want my husband to know how much I appreciate his making coffee, on occassion, for the past 2 months of our marriage (including yesterday morning) just in case he didn't pick up on that after last night's conversation.

Laurie: (grasping the empty coffee canister) Hey....(directed at Chad seated at the computer) is there more coffee?

Chad: Ya, I think there is some in that bag on the counter.

Laurie: I don't see a bag. Where is it?

Chad: I just assumed it was there on the counter.

Laurie: Did you see it?

Chad: I remember seeing a bag on the counter at some point.

Laurie: Did you notice that there were only 5 individual grounds left in the cannister this morning after you made coffee?

Chad: Ya I saw that.

Laurie: Why didn't you say anthing.?!We could have picked some up at the store today! Now when I am up at 5 am tomorrow I won't have any coffee! AARRGGHH!!!

Chad: You probably should have bought some more when you emptied the bag into the cannister.

Saturday, April 22, 2006

Horse-ing Around


Some of you may be following our search for a horse for E.....it has turned into quite the soap opera....let's see ...we'll call it.... One Lie to Live.....that sounds about right.

Scene 1: (Laurie, dressed casually, is on the phone with a possible lead)
Laurie: Thank you so much for calling me back! I am looking for a horse for my daughter...she is 14 and a beginner. Does your horse do well with beginners?
Nameless Lying Owner: Oh yes!! This horse was raised around children. My 3 year old rides this horse. I let her run unsupervised into the pasture and hang for hours on it's neck and the horse just stands there.
Laurie: Wow! That sounds like just the horse we are looking for. What about their health? Any health issues?
Nameless Lying Owner: Heavens NO! We never had any issues with this horse.
Laurie: That's great. Do you think we could come out and ride it today?
Nameless Lying Owner: Sure. I am about 45 minutes from where you are.
Laurie: Great! We will see you soon.
(Cut to Laurie aimlessly wandering back roads, narrowly missing being rear-ended during a poorly timed left turn.....and struggling to find the "second stop light after the bridge" when there is neither a bridge or a stop light. Finally she arrives at the "destination" (1 hr 48 min and $32.79 in gas)....a mobile home tied to a steep hillside with some good strong rope....4 horses are perched to the jagged rocky crags below the house like mountain goats. The buckskin's ears are pinned back against his head as if with super glue, the pony looks like the letter U....and the Appoloosa is covered with scabs and sores. )
Nameless Lying Owner: Hi! I am glad you made it. Were the directions good?
Laurie: Just fine (if you don't count the 3 u-turns and the 2 times I called my friend to look it up on Mapquest)
Nameless Lying Owner: Well, this is Appy and Bucky and as you can see they are...... (exactly the opposite of what I told you on the phone 2 hours ago when you left).......just like I said...great for kids and in perfect health.
Laurie: Hmmmmm, the appoloosa is covered with sores.
Nameless Lying Owner: Oh that is totally normal. I have had the vet look at her and he said she is just fine. We don't even have to put anything on them. You can call him if you would like. His name is.....
Dr. Vrummmlishmsner....I don't have his number with me but it's in the phone book.
Laurie: And Bucky has his ears back a lot.
Nameless Lying Owner: Oh he does that all the time but he has never done anything. I guess he just likes to make funny faces is all.
Laurie: Well, you said we could ride them. Where would we do that? (camera pans to the sheer cliffs)
Nameless Lying Owner: Oh right! I wouldn't be able to do that until next weekend because I would have to haul them to a riding arena and I have to work every day this week.
(Camera focuses on Laurie, her eyes wide and expression blank)
Laurie: Okeeeeeee. Unfortunatley I can't buy the horse until after I have ridden it. (DUH!!!!!!!!!)
Nameless Lying Owner: I totally understand, but just to let you know I have 17 other people coming to look at them today and I can't promise they will still be here.

Tune in tomorrow when we find J in the hospital after the rocks give way underneath his feet and in an effort to save himself he reaches for the fence where he receives and enormous shock which spooks Bucky causing him to rare and send E tumbling down to the ledge below.

Friday, April 21, 2006

Some days call for playing country songs backwards!

You get your house back
You get your dog back
You get your best friend Jack back
You get your truck back
You get your hair back
You get your first and second wives back
Your front porch swing
Your pretty little thing
Your bling bling bling
And a diamond ring
You get your farm and a barn and the boat and the harley
First night in jail with Charlie
You get your mind back
Your nerves back
Your first heart attack back
You get your pride back
You get your life back
You get your first real love back
You get your big screen tv, a dvd, and a washing machine
You get the pond, the lawn
The bail and the mower
You get to go back where you don't know her!

Scattered? Absurd? Just play a country song backwards!

Letter to Oprah upon request

Dear Oprah,
At 36 years old I was diagnosed with Breast Cancer or Ductal Carcinoma Insitu. It was the last thing in the world I imagined would happen to me. Only a few short years before my mother and my best friend's mother had been diagnosed with BC. Children are supposed to be older when this happens...mine were 3 and 7.

My mother took the route of traditional medicine and survived but my friend's mother sought more natural forms of treatment and we slowly watched her slip away.

My cancer was found during a routine mammogram. At 27 I had breast reduction surgery and was required to have a mammogram....for some reason I just kept having them each year. Even with my mother's history my Dr. didn't recommend having them until age 40. I don't think I ever would have turned 40 as it turns out.

What they found in my "perfect" new breast were just specs. Little tiny white specs that looked like a grain of salt. How do little white specs rob children of their mother? History of great women? Babies of their Grandmas and Aunts to role model love? There was no lump, nothing I could feel....on the outside at least.

They were malignant...now what? They tell you "you're lucky" but you don't feel lucky, at least not at first. Not until you go to your first oncology apt. and sit in the waiting room. Husband's clutching their wives... and children who have never seen their mom w/o a scarf on her head...all of a sudden you ARE lucky.

I was in the bath when the phone rang. .... the call....I looked down at my breast and cried and felt so betrayed. I thot of everyone but myself for the first few minutes. My husband....my children.....my mom.
So many feelings...life/death/fear/courage/grief/relief.

I am full of fear but I am alive....my children's mother is alive. It has been 6 years and I am still here. I can't read magazines in October, or attend support groups, or try on clothes. Mine is not a success story but I am a survivor.

Thursday, April 20, 2006

Comfort Food

There once was an overwhelmed mom,
Whose ideas for dinner were too calm,
So she spoke to a friend,
Some canned chicken she'd lend,
and the pot pie she made was da' bomb!!!

Monday, April 10, 2006

IT'S SOOOOO OVER!

One of the aspects of Asperger's (AS) is difficulty dealing with intense emotions...Whether really happy, sad, angry etc...they are all very overwhelming, and self control is often harder to come by. This of course makes for very good and fun times! LOL as they say.
Yesterday was the last day of Spring Break, and it was time for me to once again crack the proverbial yet useless whip that is my verbal instruction. I started by telling E that due to her allergies, and the fact that you could make 6 giant bird nests for the nearly extinct Northern Bald Ibis (Geronticus eremita) with all the cat hair in her room.....there is now a "no pet in your room" policy. This takes me back to the intense emotion explanation above. She then, in an effort to cope with the devastation, launched into the daily "you hate me" diatribe that all parents of 14 year old girls know and love and have long since tuned out. But in a moment of weakness I recklessly said, "you know, if you were a little nicer....." ( I am embarrassed to continue but you get the gist). That was all this brilliant little 14 year old needed to set her selective focus on yet more passive/aggressive ways of getting me back.
She started by dragging her bedding (and the cat's) into the hallway outside her room to sleep. (Take that mommie dearest!)This is where I found her at 6:30 am when I went to wake her for school. ARGH!
"You are sleeping in the hall?!" I ask, "I know" she says looking up at me like I was blind but now I could see. "It's time to get up for school" I grump. After the traditional 10 minute time lapse I say again, "It's time to get up!"
"I AM!" she grunts as she lays motionless. Now 5 more minutes "E....It is time to get up and get dressed NOW"...."I KNOW THAT! I AM! " she yells .... and my ears ring in the silence that follows. It is now that my heart pounds with frustration and I determine that I am not going to suffer from stress induced illnesses brought on by this, and I take a deep breathe. Minutes pass and eventually she casually walks down the stairs, blonde hair tousled by sleep, and says...."Why didn't anybody wake me up?"
AAAAAARRRRRRGGGGGGHHHHHH!

Saturday, April 08, 2006

"I DO"


Hi, Lisette here. I am pleased to introduce you to the Gentleman, pray, the King of the castle Chadwick Fitzwilliam. You see, I didn't mean to forget him in the last entry, it's just that when you are a princess you have often times to overcome the terrible habit of thinking of yourself first.
The other great thing about living in this castle of mine is that I get to say things like "pray" and "a chaise and four". Well you must excuse me pray, my presence is requested for tea at half past.

Princess Lisette



Doesn't this look like a fabulous place to live?

I think I would like to live in a castle. There is no other reason for this post. Why a castle? Well because in a castle you have space...lots of space...you have a cook, an assistant, someone to do laundry, a nanny....hellooooooo...a driver, very beautiful friends.....don't get me wrong I have beautiful friends, every last one of them, inside and out (yikes, hang on, let me explain...) but when you live in a castle you are always more attractive than anyone else in the story AND it happens without even trying! (hopefully I came out of that one unscathed). You also have zillions of books, dust-free accomodations, there is always a fire in a fireplace somewhere (I LOVE THAT), huge beds that make you feel like you live with giants, you always have a very cool name ( mine would be Lisette) and...................everyone, yes everyone, says please and thank you!!!! Ahhhhhhhhhhh.................

Tuesday, April 04, 2006

Never Waver

by a dear friend R.T.

At first it was a slice of semi-Heaven. Watching E lovingly drink in every little characteristic of the horse was to truly enjoy her daughter in a way she'd only longed for till now. But Laurie forced herself to reiterate what was at stake. Not to discourage E, but because she knew it was perhaps her daughter's last chance. "Remember, when school resumes, you'll only be able to come visit her if you've been at school the entire day. The entire day E'."
E didn't even glance at Laurie, "I know!" she said angrily, wanting to bring the subject to a permanent close.
And so it went for the rest of Spring Vacation until that fateful Monday. E grumbled in her typical manner, despising how early she'd had to get up. Laurie resisted mentioning the horse. It was powerful ammunition she wanted to use carefully, and so she watched and waited, wondering how the morning would play out. E went to school and stayed the whole day, but Laurie knew better than to count on this being a pattern. Once again E enjoyed the horse and all was well. Until morning.
Getting up earlier than usual once was one thing. Doing it twice was unbearable. And so E dug her heels in and refused to go to school. At all. Laurie took a deep breath then let it out slowly and easily. "Very well," was all she said. E was slightly alarmed at how easily Laurie gave in, but she chose to ignore the implications of what that might mean.
Hours later she arose, convinced that the day must be spent enjoying the horse. She went downstairs to find her mother finishing up in the kitchen. "Hi honey," her mother said. She didn't even sound angry. "I left some extra oatmeal in the pot for you. I'll be back in a few hours."
"Where are you going?" E asked. "I don't want to be here alone. Besides, I want to ride the horse."
"Sorry," said Laurie as she grabbed her keys. "You should have gone to school." And with that she left before E could summon up her wrath.
After a few hours of running errands and ignoring her cell phone, Laurie returned home to find E whipped up into a near-convulsive state of panic. "Where have you been!! The horse is sick!! She needs us to get over there now!!!"
Laurie sighed. She knew this had been coming, but the knowledge didn't make it any easier. "The horse is fine. If you wanted to see her you should have gone to school. Now move out of my way, this package is heavy." Laurie knew restating the facts wasn't necessary, but she said it clearly and resolved not to say it again. She was only going to put herself through so much.
E followed her, shouting out various crises, ills, and injuries the horse was suffering; never once acknowledging that the real crises was the once roiling in her gut. The sheer panic that for once, the thing at stake really mattered. The conflict of wanting to be with the horse, wanting to touch it, smell it, hear it's sounds, and the reality that it was her own actions that was preventing it from happening was almost too much to bear. No, it wouldn't do. Something would have to give, and that something was mom. With all the force and fury that E could muster, she directed her anxiety upon the weakest link between her and her horse, her mother. She would make Laurie's life so hellish, so unbearable, that a compromise would surely be formed on new terms. But little did she know how strong her mother's resolve was. Little did she know that Laurie had been praying, been preparing, been digging in her own heels for this fight.
"Never waver," had become Laurie's new mantra. Somewhere deep inside her, deeper than even E's fury could reach, Laurie had resolved that she would hold to one unmovable standard. School = horse. Period. There would be no compromise. There couldn't be. There were no more options left. The school had made that perfectly clear. No one else was going to provide the incentive. No one else was going to instill the fear. No one else was going to present the inspiration. No one else but this gentle, wise, motherly horse. This patient horse that somehow embodied every quality that E lacked. It stunned Laurie the way E seemed to draw from these qualities whenever she saw them together, and the purity of the relationship, the sheer caliber and perfection of the partnering demanded a new standard of cooperation that even Laurie couldn't bring herself to compromise. It was just too important. "Never waver". She said it to herself again and again.
And so she weathered what seemed to be the force of hell itself. E's panic took an endless variety of forms, always managing to avoid it's true form; that of a girl who's bluff has finally been called. The loss of control was literally sickening to E, and Laurie and Chad frequently felt real pain over the suffering of their daughter. Yet when it became too much, Laurie would escape the heat to go ride the horse and she'd feel her resolve emboldened by the instantaneous response of the beautiful animal. As if the horse were fully aware of the war that raged over her existence. She patiently waited while Laurie put her tack on, sympathetically listened as Laurie poured her heart out, and encouraged Laurie with her instantaneous responses to the most subtle gestures of control, giving Laurie a glimpse of the strengths and abilities that E would be privy to once the battle was won. She could only wonder what realizations E would collect as she finally worked with the horse.
Sensing the strength of Laurie's resolve, E changed tactics. She no longer cared. "The horse is stupid," she insisted. "I want a different horse," she declared. In some ways, E was speaking truthfully. The conflict of wanting something denied was best soothed by no longer wanting it. It had worked many times before, and for awhile it worked now. But every time E heard Laurie talk about the horse, praise it's nature, boast about it's responsiveness, a lump would form in E's throat that even beating on her brother couldn't satisfy.
Finally, after months of trying, it made its way into E's head. There was no other way. She had to attend school. Even worse. She had to get there on time! Oh, how E had strove to achieve a mere 3 minutes of compromise, the tiniest fraction of control within this hellish deal, but no. Her mother had remained firm. If E was not at her desk when the bell rang, the first bell, and the last, the horse would not be hers.
One thing was for certain, she would never admit, not even to herself, what it meant to see the school day through and be with the horse. To know that her standing before it was proof positive that she had survived the unpleasant, the uncomfortable, the insufferable. She had survived it and she had earned the pleasure of her horses presence. A presence made sweeter for the victory of having gotten through it. The confidence it instilled in her was imperceptible at first. Only the horse could sense such subtle shifts of nature. But by September, with a summer spent loving her best companion, and being frequently reminded by her parents that the battle would resume again and that they were prepared to see it through, E found herself mentally preparing herself for school in spite of her best efforts to deny it even existed.
That following year she was surprised that it was not so traumatic. Maybe it was because it was familiar this time. Maybe it was because her memory had exaggerated how awful it had been, but whatever it was, after a few weeks of retesting her parents resolve, (a battle sooner lost because she simply could not bear any extended time without her horse), E found herself keeping stride with the demands of the day. A young woman still uncomfortable with her world, but no longer at war with it.

DING! Round Two

So the new horse comes tomorrow. I could tell by the look in her eye she is up to the challenge!
Even Chad likes her and that, my friend, says a lot for this horse.
Again we have name "issues"---- her name is currently Mercedes Thunder Breeze. And don't say "call her Mercy or Breezey" because I will have to....well throw up honestly. When it comes to animal names I like to go for the least obvious or over-the-top obvious. Chad said to name her Pam. It goes back to a personal story where a british friend thought someone's name was Pam when it was really Tammy. Every time they saw eachother she would say in her thick accent "Ellow Pam!" That is why we thought it would be funny. Then we thought of naming her Stella......obviously so we could yell STELLA!!!!!! like Marlin Brando. Then, because she is a Paint/Pinto we thought we would go with a Native American name like She Who Runs
A lot .....but as of yet we have no real solid choice. We then went with names from our favorite movies.....Elizabeth, The Pie, Jem, Cordelia....
The bottom line is she comes tomorrow and she is still the horse with no name!
Any ideas?????????????

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